Our vision

A society that guarantees the human rights of all people born with Spina Bifida and Hydrocephalus and practices primary prevention of neural tube defects.

Discover

A society that guarantees the human rights of all people born with Spina Bifida and Hydrocephalus and practices primary prevention of neural tube defects.

Latest news

14 October 2025

Join IF Webinar on Inclusive Employment on 20 October 2025

As part of the World Spina Bifida and Hydrocephalus awareness month, IF is hosting a webinar named 'Inclusive Employment and Skills for Life'. The webinar will bring together voices from the SBH community as well as advocates and experts working on inclusive employment policies.
5 October 2025

International Day of Older Persons 2025 – Celebrating Ageing with SBH

On October 1, the IF Working Group on Ageing with SBH highlighted the experiences of ageing with SBH emphasizing empowerment, independence, and inclusion across all life stages. Speakers shared inspiring stories of perseverance, dreams, and creativity, showing that with support and determination, people with SBH can lead meaningful, fulfilling lives.
1 October 2025

Agenda | October Spina Bifida & Hydrocephalus Awareness Month

October is Spina Bifida and Hydrocephalus Awareness Month, filled with inspiring events and activities organised by IF and its members across the globe. Together, we aim to highlight the urgent need for inclusive healthcare, rights, and opportunities for people living with Spina Bifida and Hydrocephalus. Join us in celebrating WSBHD on 25 October!
26 September 2025

Register for the 31st International Conference for Spina Bifida and Hydrocephalus Oct 15-17 2026

Join us for the 31st International Conference on Spina Bifida and Hydrocephalus October 15–17, 2026 in Montreal, Canada. You are warmly invited to take part in this global gathering of experts, advocates, and community members. Register today and secure your place in the conference program!

Discover our work

RIGHT TO HEALTH

To establish equal opportunities for people with Spina Bifida and Hydrocephalus and combat discrimination at all levels of society

PREVENTION

To tackle the primary prevention of neural tube defects (NTDs) and hydrocephalus as a united global community

Community building

To empower national spina bifida and hydrocephalus associations to advocate for the human rights of people with spina bifida and hydrocephalus

International solidarity

To prevent spina bifida and hydrocephalus and to improve access to treatment, lifelong care and knowledge for people with spina bifida and hydrocephalus and their families in developing countries

World SBH Day

To raise awareness and understanding about Spina Bifida and Hydrocephalus and to advocate and promote the rights of persons with these conditions

Conferences

The 30th International Conference on Spina Bifida and Hydrocephalus took place on October 24 to 26, Kuala Lumpur Malaysia.

Our members

IF’s fast-growing membership now includes over 100 Spina Bifida and Hydrocephalus (SBH) associations in Africa, Australia, the Americas, Asia and Europe. Membership of IF is open to all nationally registered SBH associations that share IF’s vision and mission and actively involve people with SBH in their work. Organisations, institutions, companies and individuals with an interest in SBH and the aim to widen the extent of their activities are also welcome to apply for IF membership. Check out our Membership Guide to learn more!

Please note that this map also displays SBH associations that are not a member of IF. They are represented by a red dot. If you know of an SBH association not represented below, please email us at info@ifglobal.org.