Description

HOPE-Spina Bifida and Hydrocephalus (HOPE-SBH) is an association founded in February 2017 to create a better future for the lives of Spina Bifida and Hydrocephalus children and their families. It has been involved in various activities country-wise since then. Our organisation has been working towards establishing a multidisciplinary care system, providing a waiting place pre- and post-surgery for SBH children and their families, providing continence management training for nurses and children living with spina bifida, and advocacy and public awareness programs.