1 March 2019
At the end of May we are all called to vote for the European elections 2019 and IF strongly encourages European people with SBH to...
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as...
25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International,...
13 February 2019
The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants...
31 January 2019
2019 marks the 10-year anniversary of the Smarter Futures partnership in which Nouryon collaborates with the International...
30 January 2019
IFGPI has started a new programme to engage IF members in prevention initiatives. The first prevention clinic has proved to be a...
28 January 2019
Researchers at the Sunnybrook Research Institute in Canada have created a survey on pregnancy complications and outcomes in women...
24 January 2019
Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and...
9 January 2019
IF has launched a questionnaire on sexuality and body-awareness of people with Spina Bifida and Hydrocephalus (SBH). ...
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
