Latest news

6 December 2023

IF Statement on Conflict and Humanitarian Crisis

In an upcoming statement, IF calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and...

6 November 2023

IF joins the 49th ICBDSR Annual Meeting

On November 6 2023, Dr Sylvia Roozen - Secretary General of the International Federation for Spina Bifida and Hydrocephalus...

25 October 2023

World Spina Bifida and Hydrocephalus Day 2023 Conference: Accessibility for All!

The WSBHD23 Conference brought together global communities to raise awareness about Spina Bifida and Hydrocephalus. IF members...

16 September 2023

Youth Engagement during the SDG Summit 2023

On September 16 2023, IF youth member LauraRosillo Beneyto represented the global disability community on behalf of IF and IDA at...

6 September 2023

Proposal for Directive on European Disability Card has been Approved!

Today, the Commission has proposed the introduction of a European Disability Card as well as the enhancement of the current...

15 August 2023

IF IS LOOKING FOR A MEMBERS ENGAGEMENT AND COMMUNICATIONS OFFICER

Are you passionate about working with persons with Spina Bifida and Hydrocephalus, engaging with international stakeholders,...

2 August 2023

Take part in our survey on person centred paediatric urological guidelines for spina bifida (now available in 11 languages!)

Collaboration of the International Federation for Spina Bifida and Hydrocephalus with the European Association of Urology (EAU),...

30 June 2023

IF Newsletter is out now

It is a real pleasure to share with you the third newsletter of the year 2023. With this newsletter, we, together with YOU, look...

16 June 2023

COSP16 SIDE-EVENT SUCCESFULLY REACHED OUT TOGETHER