Our work

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RIGHT TO HEALTH

To establish equal opportunities for people with Spina Bifida and Hydrocephalus and combat discrimination at all levels of society

PREVENTION

To tackle the primary prevention of neural tube defects (NTDs) and hydrocephalus as a united global community

Community building

To empower national spina bifida and hydrocephalus associations to advocate for the human rights of people with spina bifida and hydrocephalus

International solidarity

To prevent spina bifida and hydrocephalus and to improve access to treatment, lifelong care and knowledge for people with spina bifida and hydrocephalus and their families in developing countries

World SBH Day

To raise awareness and understanding about Spina Bifida and Hydrocephalus and to advocate and promote the rights of persons with these conditions

Conferences

The 30th International Conference on Spina Bifida and Hydrocephalus took place on October 24 to 26, Kuala Lumpur Malaysia.

Maternal Health and Prevention

A healthy pregnancy starts with healthy nutritions. During the first 1,000 days of life, a healthy lifestyle including balanced nutrition is important to establishing a child’s future health.

IF INTERNATIONAL YOUTH GROUP

The primary aim of the group is to bring a group of young people with Spina Bifida and/or Hydrocephalus (SBH) together from all around the world who want to work together with

Working Group on Ageing with SBH

To improve our understanding of the lived experience of people ageing with spina bifida and hydrocephalus (SBH) in Europe