NETWORK DEVELOPMENT

The International Federation for Spina Bifida and Hydrocephalus holds Special Consultative Status at the Economic and Social Council of the United Nations and Participatory Status at the Council of Europe.

IF has representation on different Boards: Dr Sylvia Roozen – IF Secretary General represents IF in the Executive Management Team of FFI; Cato Lie – IF President who represents IF in the board of EDF and IDA.

IF IS MEMBER OF

• European Disability Forum (EDF)
• European Patients’ Forum (EPF)
• The European Organisation for Rare Diseases (EURORDIS)
• Rare Diseases International (RDI)
• International Disability and Development Consortium (IDDC)
• International Disability Alliance (IDA)
• Food Fortification Initiative (FFI)

if has official collaboration with

• The United Nations Children’s Fund (UNICEF)
• United Nations Economic and Social Council (UN ECOSOC)
• World Health Organisation (WHO)
• European Concerted Action on Congenital Anomalies and Twins (EUROCAT)
• European Union Agency for Fundamental Rights (FRA)
• WHO Partnership for Maternal, Newborn & Child Health (PMNCH)
• European Reference Network ITHACA

IF COLLABORATES ON PROJECTS WITh

• Atlas Alliance, Norway
• Liliane Fonds
• Food Fortification Initiative (FFI)
• Helen Keller International (HKI)
• Boston Children’s Hospital
• March of Dimes
• University of Toronto, Sunnybrook Health Sciences Centre
• CURE International
• CURE Hydrocephalus
• CDC’s National Center on birth Defects and Developmental Disabilities
• University of Ghent

IF’s PARTNERS IN DEVELOPING COUNTRIES

• CURE Children’s Hospital Uganda
• Organised Useful Rehabilitation Services Uganda (OURS)
• Katalemwa Cheshire Homes Uganda
• AVSI Gulu Uganda
• Spina Bifida and Hydrocephalus Awareness Network, Uganda (SHYNEA)
• Spina Bifida and Hydrocephalus Association Uganda (SHA-U)
• BethanyKids at Kijabe Hospital Kenya (BKKH)
• Beit CURE Hospital Zambia
• Queen Elizabeth Central Hospital, Malawi
• Parents Association for Spina Bifida and Hydrocephalus Ltd, Malawi (PASHL)
• Zambian Association for Hydrocephalus and Spina Bifida (ZAHSB)

IF GETS FINANCIAL CONTRIBUTION FROM

• European Union (EU)
• Bühler
• Nouryon
• Vitabiotics Pregnacare
• The Global Alliance for Improved Nutrition (GAIN)
• Child – Help International
• Norad, Norway through the Norwegian Association for Spina Bifida and Hydrocephalus
• Food Fortification Initiative (FFI)
• CDC Foundation
• Ministry of Foreign Affairs of the Netherlands
• International Disability Alliance (IDA)